Since David died in March 2011 The David Ashwell Foundation has raised over £157,000 for research into the rare disease that so cruelly robbed David of his life.
Our fundraising since 2011 has, along with the Alveolar Capillary Dysplasia Association (US registered charity), funded four small research grants into the genetics of ACD. A fifth grant has recently been advertised. These studies are exploring the little known genetics around this rare disease & will provide answers about the causes as well as potential treatments in the future.
The David Ashwell Foundation supports three activities, one of which is to support research into Alveolar Capillary Dysplasia (ACD).
Alveolar capillary dysplasia is a very rare congenital malformation involving abnormal development of the capillary vascular system around the alveoli of the lungs. Babies with ACD may appear normal at birth but within minutes or hours they develop incurable respiratory distress .
There is no treatment for ACD and as it is so rare, there has been little research into this devastating and usually fatal illness.
The David Ashwell Foundation was set up in memory of Brian David Ashwell. In March 2011 his first grandson, named David Fazlollah Upeska Ashwell, was born and 48 hours after birth became seriously ill. David died aged only 15 days old from ACD.
These funds will only be used to support research into this rare and fatal disease. Money raised will be added to the Restricted ACD Research Fund at the National Organization for Rare Disorders (NORD) to fund the next ACD research grant. For further information on ACD please see the Alveolar Capillary Dysplasia Association (ACDA) website.