PSC Support - November's Cause of the Month

PSC Support is the only UK charity dedicated solely to improving the lives of people affected by primary sclerosing cholangitis (PSC).

What is primary sclerosing cholangitis (PSC)?

PSC is a rare, immune-mediated liver disease that can affect anyone at any age, including children. At the moment, there is no cure for PSC. This means that there is nothing that can slow down or halt the progression of the disease.

People with PSC live with daily symptoms that are invisible, such as fatigue, itch, nausea and pain. They also face an increased risk of bile duct cancer, gallbladder cancer, liver cancer, and in some cases, bowel cancer. In some people living with PSC, the liver becomes so damaged over time that it stops working properly, or they get repeated, uncontrollable bile duct infections meaning that a life-saving liver transplant is needed. Even then, PSC returns in around a third of patients.

It is a complex and unpredictable disease and this means that people living with PSC are often dealing with a huge emotional burden as well as a physical one.

What we do

Research

PSC Support is committed to helping support and drive PSC research through funding research and supporting our amazing PSC researchers in their vital work.

International Advocacy

PSC Support represents the needs of PSC patients from all over the world. We are dedicated to raising standards and quality of care for people with PSC and have helped develop clinical care guidelines for managing PSC. We were also the first patient organisation to evidence and represent the unmet needs of those affected by PSC and bridge the gap between traditional scientific knowledge of PSC and real-world PSC, as experienced by patients.

Support and Information

We provide up-to-date, high-quality information for anyone affected by PSC and medical professionals. We offer a helpline and messaging support service, and an active Facebook group as well as in-person PSC Information Days and online Q&A sessions with PSC experts.

Our vision is to see a world without PSC

PSC Support is a small charity doing big things! We’re working hard to continue to raise awareness of PSC, advocating to improve healthcare for PSC patients and drive research to improve the quality of life and treatment options for people with PSC.

PSC Support is run by a small team and we are reliant on our amazing fundraisers and donors to keep our work going. Every penny raised helps us on our mission of improving the lives of PSC patients and their families, and working towards finding a cure.

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