About The Foundation
The CdLS Foundation UK & Ireland is part of a World Federation, working to raise awareness of CdLS within the professions, and providing support for families with an affected person.
Our mission: “The CdLS Foundation UK & Ireland is a family support organisation which exists to ensure early and accurate diagnosis of CdLS throughout the world, promoting research, and enabling individuals, families, friends and professionals make informed decisions and plan for the affected person’s present and future.” We do this by organising conferences around the UK and Ireland, where we bring families to meet experienced doctors from around the world who will share their knowledge. We help professionals to pool information. We bring families together so CdLS people can meet others of a similar age. We support research into the cause and effects of CdLS by working with leading universities. We produce a magazine, information booklets, a website and offer a family support service. Once families are in touch, they are part of an extended global family that will help to guide them. But we are small. There are no large grants from central government. Everything we raise is raised by the families and friends of people affected by CdLS. That’s why any help you can give us will make a difference. By helping us raise funds, you help us achieve our goals. By just recognising the face of a CdLS child and remembering our name, you may help another ‘lost’ family to get in touch. We appreciate your support.
t: +44 (0)1375376439, e: firstname.lastname@example.org, w: www.cdls.org.uk
Registered UK Charity No. 1054033. Registered for GiftAid and GAYE schemes